[governance] IGF Dynamic Coalition on Privacy: Geneva, 11 February, 14:00-18:00

[Sylvia Caras]

On 2/1/07, Ralf Bendrath <bendrath at zedat.fu-berlin.de> wrote:
> -------------------------------------------------------
> Working Meeting of the IGF Dynamic Coalition on Privacy
>
> 4. Thematic block III: privacy and freedom of expression
>
>    short input presentations by:
>    - Christian Möller (OSCE, tbc)
>    (still looking for more feedback)
>

Perhaps not on topic, but there is currently a polarized US discussion
about electronic health records - whose data is it, who determines
'health', does patient have the right to withhold health information
from provider, ...  Providers: need to know to provide accurate care,
avoid liability, ...  Patient: my data, my decision, my health, my
responsibility.   Basically the tension between utility and autonomy.
What's interesting is that despite the discussions, business is
writing software, insurance and health providers are using it, and the
standards are set defacto before standards agreements that involve
end-users, civil society.

Sylvia
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