<div dir="auto">Accept my condolences George and thanks for thé exhaustive tribute. May the soul of Jo-Anne rest in perfect peace<div dir="auto"><br></div><div dir="auto">Agien Nyangkwe</div></div><br><div class="gmail_quote"><div dir="ltr">On Sat, 17 Aug 2019, 22:58 Carlos Afonso, <<a href="mailto:governance@lists.riseup.net">governance@lists.riseup.net</a>> wrote:<br></div><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex">Dear Paul & all, words fail me on this. Read all the memoirs Enzo,<br>
Peter, George and others brought to the list with emotion.<br>
<br>
I will write Scott right now.<br>
<br>
fraternal regards<br>
<br>
--c.a.<br>
<br>
On 16/08/2019 20:38, Paul Wilson wrote:<br>
> Thanks for this George.<br>
> <br>
> Jo-Anne’s partner, Scott Weikart, write this beautiful, more personal<br>
> account, of life and her final days. He’s happy to have it shared in her<br>
> memory, especially for those who struggle in any way with Alzheimer’s.<br>
> <br>
> I really hope to see Jo-Anne recognised in ISOC’s Hall of Fame; she was<br>
> a pioneer.<br>
> <br>
> Paul.<br>
> <br>
> <br>
> -------- Forwarded Message --------<br>
> <br>
> Subject: (mostly) sad news<br>
> Date: Tue, 6 Aug 2019 16:19:11 -0700<br>
> From: Scott Weikart <<a href="mailto:sweikart@gmail.com" target="_blank" rel="noreferrer">sweikart@gmail.com</a>><br>
> <br>
> I have (mostly) sad news: Jo-Anne Scott died unexpectedly (on Sunday,<br>
> July 14, 2019), at home in her own bed, clutching her green stuffed<br>
> hippo to her neck for comfort. I say "mostly sad", because it was a<br>
> good time to die: She declined significantly over the previous month,<br>
> from her severe Alzheimer's disease. She had started sleeping all day<br>
> long, and then lost the use of her legs (on the few days she didn't<br>
> sleep all day long, I used her Hoyer lift (personal crane) to put her in<br>
> her wheelchair, so I could take her out to sit on the front porch; but I<br>
> had to wrap her gait belt around her armpits and the back of the chair,<br>
> to prevent her head from ending up in her knees). Along with the<br>
> physical decline, she declined mentally: Her interaction with the people<br>
> around her became much more limited.<br>
> <br>
> In retrospect (if I'd known she was on the verge of dying), I would have<br>
> spent more time sitting with her and consoling/stroking her the last<br>
> couple of her days: but I take solace in all I was able to do 'for' and<br>
> 'with' her over the last decade (and her PCP's comment that I was a<br>
> better caregiver than the professionals; and her neurologist's comment<br>
> that "You set the bar, in my experience, for loving, flexible, creative<br>
> caregiving; I am grateful to you for those years of hard, patient work:<br>
> You did really well by her"). [I was able to get her body to Stanford<br>
> in time for her brain to be preserved for the research study in which<br>
> she participated: She really appreciated being a research guinea pig, to<br>
> help prevent future generations from experiencing her disease.]<br>
> <br>
> Jo-Anne's best friend Laurel (50 years!) had driven down 3 weeks<br>
> earlier, and two friends dropped by; I had to wake Jo-Anne for the<br>
> visit, but she was relatively alert, and enjoyed Laurel's Samoyed puppy<br>
> (see attached picture; the second picture is Jo-Anne gazing lovingly at<br>
> Laurel). Laurel and I have shared the sadness of Jo-Anne's death, and<br>
> also good remembrances; Laurel offered the perspective that we were a<br>
> good match for each other, and Jo-Anne was lucky to have me over the<br>
> last decade and last year (in the days after, friends and siblings have<br>
> said the same, a comfort). One night, Laurel and I spent a couple of<br>
> hours emailing back and forth with the insights/changes we'd gained from<br>
> our closeness with Jo-Anne (which was not conducive to a good night's<br>
> sleep :-) ... when I saw her the next day, I couldn't get enough<br>
> physical contact with her.<br>
> <br>
> Jo-Anne was diagnosed with very-mild Alzheimer's disease 10 years<br>
> earlier (after 3 years of substantial short-term memory loss; in fact,<br>
> her cognitive impairment literally started around 1990: The disease<br>
> starts early, and grows slowly). Our journey together with her<br>
> Alzheimer's disease was hard, but our life together was good, and our<br>
> love deepened. Up until 3 years ago, Jo-Anne could still spend her day<br>
> bicycling all over town by herself (which she loved, and always wanted<br>
> to do), festooned with tracking devices (occasionally, I'd see she was<br>
> headed away from home late in the day, and I'd hop on my bike and chase<br>
> after her). I attached a picture of us that a friend took, when we'd<br>
> just biked to a local event. We often took our bikes on Caltrain to San<br>
> Francisco, biked up to Golden Gate Park, and spent the day in the<br>
> science museum (Jo-Anne loved nature, and turned me into a nature<br>
> lover). Then Jo-Anne started spending 3 days a week at (wonderful)<br>
> Rosener House, doing all kinds of activities with fellow folks with<br>
> dementia (in her first year there, the staff would send new folks to<br>
> hang out with her, because she was engaging). When she couldn't<br>
> reliably follow me on her bike, we got a tandem bike, and biked back and<br>
> forth to Rosener House together (with a long bike ride home at the end<br>
> of the day: Frequent, extended aerobic exercise is the best thing you<br>
> can do for your brain). In early 2018, Jo-Anne started sleeping much<br>
> longer, so she could no longer attend Rosener House; soon after, she<br>
> started having trouble walking. Then Jo-Anne acquired a fearless<br>
> companion (she was not bothered by my warning that Jo-Anne once stepped<br>
> on my foot and broke a toe) from Mon Ami (whose new techie is Steve<br>
> Fram, ex-Technical Director at IGC!), who got Jo-Anne back into walking,<br>
> and setup Jo-Anne's smartphone so she could listen to 70's rock-and-roll<br>
> and soul music. Jo-Anne's sleep got even more erratic, so planning Mon<br>
> Ami visits became too hard; but a wonderful neighbor started taking<br>
> Jo-Anne on long walks (she made herself available with just an hours<br>
> notice, on the days Jo-Anne awoke in time); by late fall of 2018,<br>
> Jo-Anne could walk 10 blocks (mostly on her own) with her neighbor<br>
> friend (who Jo-Anne now recognized, and appreciated). By 2019, Jo-Anne<br>
> rarely spoke phrases, but still understood quite well, and could answer<br>
> (repeated) questions. We listened to podcasts as we ate, and she'd<br>
> laugh at jokes, and exclaim about global warming news (guiding my<br>
> selection of the podcasts we'd listen to). Three months before her<br>
> death, I went in to the bedroom to see if she was awake, and she gave me<br>
> a big smile, and said "I've been waiting for you!": She was still<br>
> laughing at my jokes and foibles, full of smiles, always wanted to have<br>
> her smartphone strapped to her arm so she could listen to music<br>
> (sometimes tapping her feet). In her last few months, it took 3<br>
> (wonderful) neighbors to take her for a walk; but she always liked it,<br>
> liked seeing the flowers and animals, wanted to continue even as she<br>
> wore out her brain trying to consciously control her leg muscles. Even<br>
> in her last month, she still recognized and loved/appreciated old<br>
> friends, enjoying hanging out with people, laughed and smiled. Her last<br>
> decade could have been so much worse, and was wonderful in many ways.<br>
> It was an honor and privilege to take care of her, and I've grown so<br>
> much in the process.<br>
> <br>
> Jo-Anne was courageous. As a teenager, she and her best friend Laurel<br>
> setup camp near a cliff, and found themselves cornered by adult bears<br>
> with cubs: They banged away on their metal cups with their spoons, until<br>
> the bears trundled away. Another time, Jo-Anne and I were walking a<br>
> trail in Big Sur: Jo-Anne jumped a couple of feet into the air to get<br>
> away from a rattlesnake (she was very athletic), but was otherwise<br>
> unperturbed. Another time, we parked in a back alley of the old Whiskey<br>
> Gulch in East Palo Alto (where my first non-profit got started), so I<br>
> could finish my work before driving to Yosemite; Jo-Anne heard a noise,<br>
> went outside to check our van, found that a suitcase had been stolen,<br>
> then chased after the thief (in the dark): She found him rummaging<br>
> through the suitcase's contents, yelled at him to chase him away, then<br>
> fetched the suitcase and contents and brought them back. This<br>
> courageousness helped our journey with Alzheimer's: Jo-Anne was always<br>
> willing to do most anything for researchers; or to try most anything to<br>
> fight the disease, to try to slow-down or overcome the ravages.<br>
> <br>
> In decades past, people who met Jo-Anne usually noticed that she was<br>
> nice and friendly. If they saw more of her, they might realize she was<br>
> thoughtful/perceptive about people (she was active in a group of people<br>
> who did peer-counseling; one of our friends told me she was his best<br>
> counselor). And she was very helpful. When her ex-husband's brother<br>
> was going through hard times, Jo-Anne let him live in her house for many<br>
> months. Jo-Anne regularly visited a schizophrenic friend, for years<br>
> (ignoring his verbal "advances"); she even went to court to prevent<br>
> California from making him a "ward of the state".<br>
> <br>
> People who spent time talking to Jo-Anne would also realize how smart<br>
> she was. She was an amazing person. I called her a "Renaissance<br>
> woman": She'd done so many things, and could teach herself to do most<br>
> anything ...<br>
> <br>
> Jo-Anne realized she had picked up racism towards Latinos from her<br>
> mother: So she took Spanish classes, then lived in Central America for<br>
> half a year; she saw Nicaraguans fighting against an oppressive<br>
> dictator, and came home with a strong appreciation for how hard peasants<br>
> had to work to support their families. During the '80's, she worked<br>
> hard to prevent the Reagan and Bush administrations from intervening<br>
> militarily against Central Americans' struggle for popular control of<br>
> their own countries. She was coordinator for a college group (that did<br>
> lobbying, and organized speaking events and demonstrations), helped run<br>
> a political radio program, led a prominent human rights lawyer on a<br>
> national speaking tour, co-edited a scholarly book, lobbied at the<br>
> Democratic National Convention in San Francisco, lobbied her<br>
> Congressional representative (the delegation made his hands sweat :-).<br>
> One of the culminations of this work was her creation of CARNet (a<br>
> Spanish "pun"; it stands for Central America Resource Network), as a<br>
> subset of PeaceNet (that I helped create). She interned with various DC<br>
> pressure groups to teach them how to put their information into the<br>
> bulletin boards she created for each Central American country, and<br>
> helped them build communication channels with grassroots organizations<br>
> (so the DC groups could align legislative lobbying with local activism;<br>
> I now consult for a human rights organization, and its "forefather" used<br>
> to regularly download information from CARNet). She spent months in<br>
> Nicaragua (while the US was waging the Contra war against the country),<br>
> helping create Nicarao (a system like PeaceNet). She traveled up and<br>
> down Central America teaching NGOs (in Spanish) how to use Nicarao's<br>
> email and bulletins boards (over 2400 baud modems ?!); when she arrived<br>
> back in Managua, they took one look at her and said "you've got<br>
> hepatitis, you have to go home".<br>
> <br>
> In the '90's (just as her cognition was starting to decline from the<br>
> disease), she held jobs where she taught herself how to write<br>
> spreadsheet macros and build database applications. One weekend I flew<br>
> off on a business trip, and when I came home she'd replaced the furnace<br>
> (including hooking-up the gas line, and replacing/insulating the<br>
> ducting) - I don't know how she did it! Then she spent 5 years doing<br>
> all the logistics to bring techies from all the most underdeveloped<br>
> countries (using all 4 languages she spoke) to a central location (the<br>
> place where ISoc, the Internet Society, would have their annual<br>
> meeting), so volunteers could teach the techies how to connect their<br>
> countries to the Internet; we have lots of wonderful knickknacks that<br>
> the mostly-young techies gave to her, she was sort-of their den mother.<br>
> By the end of that 5 year period, she told a friend that the work got<br>
> harder each year: She was already aware that her cognition was<br>
> declining, but she thought it was hormonal issues from menopause (she<br>
> had serious hot flashes). As she had more and more difficulty doing the<br>
> myriad of required tasks, she didn't get much support from the<br>
> administrative folks who ran the conferences (nor from me, one of my big<br>
> regrets in life) ... but one lefty techie believed in her, and hired her<br>
> to run a workshop in South Africa (where she mentored some local woman,<br>
> so they could run future workshops themselves - they probably helped<br>
> Jo-Anne with tasks that had become harder for her). And when the ISoc<br>
> conference came back to SF a few years later, all the techies were glad<br>
> to see her; so she hired a full-size bus plus driver, and narrated a<br>
> tour of San Francisco for them (I was her guinea pig on a dry run, and<br>
> she did a great job!).<br>
> <br>
> In the '00's, Jo-Anne did computer consulting for a friend who ran a<br>
> travel agency, including building a website that would collect contact<br>
> info (she taught herself to do all this). And she became a serious<br>
> volunteer at the local community cable TV studio: She was the 3rd most<br>
> active volunteer for a number of years in a row, winning awards at their<br>
> annual dinner. She did computer graphics, sound, camera, directing, the<br>
> works. As her memory got worse: First she stopped directing; then she<br>
> stopped doing computer graphics; and finally, she had to stop doing<br>
> camera, because she'd immediately forget cues from the director (this<br>
> was around the time she was diagnosed with Mild Cognitive Impairment,<br>
> mid-2006).<br>
> <br>
> I recently stumbled upon the best illustration of Jo-Anne as Renaissance<br>
> woman. As I was gleaning distinctive documents from her office, I came<br>
> across lots of leaflets from the plays put on by her community-theater<br>
> group in the '70's; as I scanned the leaflets, I realized that Jo-Anne<br>
> filled the roles of actor, singer, dancer, player of piano and<br>
> Renaissance stringed instruments, director, producer, set designer,<br>
> bookkeeper, etc. You wanted Jo-Anne in your group!<br>
> <br>
> I'm co-chair and citizen scientist for the Community Advisory Board of<br>
> Stanford 's Alzheimer's Disease Research Center. They recently filmed<br>
> me as caregiver: I described our life together, how I developed skills<br>
> and adaptations as Jo-Anne's dementia got worse, and then I walked<br>
> around the house showing accommodations I made and describing the<br>
> techniques I used - they hope to use this material to produce a film for<br>
> training med students. We tried to arrange filming me taking care of<br>
> Jo-Anne, but we weren't able to schedule it in time. [I wondered<br>
> whether it was appropriate to film me taking care of Jo-Anne's personal<br>
> care, which involves nudity, for which I couldn't get functional assent<br>
> from her ... until I remembered that Jo-Anne spent many nights dancing<br>
> nude in one of her community-theater plays :-].<br>
> <br>
> My heart is wounded, and my identities are scrambled: It's going to take<br>
> me a while to rebuild myself, with a lot more crying as part of the<br>
> process (I got a headache from crying the first day, so I've started<br>
> using the electrolyte sticks I used for Jo-Anne the last few weeks, as<br>
> her meals became more limited). But I'm otherwise in pretty good shape,<br>
> dealing with the myriad things that have to be dealt with, getting calls<br>
> and visits from loving friends and family, and using<br>
> computer-programming and movie-watching to take a break from my<br>
> emotional life (getting to sleep the night she died was hard: As I would<br>
> fall asleep a couple of times, I'd suddenly wake up with the realization<br>
> that my identities were shredded, it wasn't clear who I was anymore,<br>
> there was a Jo-Anne sized hole in my being).<br>
> <br>
> I hope you're all doing better than me :-> But I'm doing pretty well,<br>
> all things considered. [I feel lucky that Jo-Anne taught me how to deal<br>
> with my emotional being; many of the best parts of me are from her,<br>
> she's a part of me.] I'm getting so many loving/supportive/affirming<br>
> visits/hugs, calls, and emails (which typically lead to little bits of<br>
> healthy crying ... a sort of episodic mini-therapy).<br>
> <br>
> My two siblings each spent a week helping me declutter and downsize the<br>
> house a year ago. That will make it much easier for me to turn the<br>
> house from "our house" into "my house", the first part of building my<br>
> new life.<br>
> <br>
> -scott<br>
> <br>
> p.s. Feel free to share this email with anyone who remembers Jo-Anne, or<br>
> who is struggling with dementia in their family.<br>
> <br>
> <br>
> <br>
> On 17 Aug 2019, at 3:53, George Sadowsky wrote:<br>
> <br>
> I'm very sad to hear of Jo-Anne Scott's passing. She was a good<br>
> colleague and a good friend.<br>
> <br>
> I first met Jo-Anne at a meeting in Palo Alto in September 1992,<br>
> hosted by Steve From and Scott Weikert. A few months before that, I<br>
> had discussed with Larry Landweber at INET'92 in Kobe the<br>
> possibility of setting up a training program in Internet technology<br>
> and use for people from developing countries. In the 1970s and<br>
> 1980s, I worked for the United Nations and was involved in many<br>
> technology transfer programs in the area of computing, and I had<br>
> seen to my dismay the state of technical knowledge, education, and<br>
> resources in most of the countries in which I had worked. Larry<br>
> suggested giving it a try. Steve Fram was one of the early<br>
> collaborators, and we were meeting in his office in Palo Alto to do<br>
> the initial planning. <br>
> <br>
> Jo-Anne attended the meeting, I had not known her before, but her<br>
> enthusiasm for the project and solving logistical aspects of making<br>
> it happen were contagious, so we became the initial band of<br>
> co-conspirators for what became ISOC's network technologies training<br>
> program for people from developing countries. Since INET'93 was<br>
> planned for San Francisco in August 1993, we decided to hold the<br>
> training workshop in the Silicon Valley just before the INET<br>
> meeting, and then have the trainees participate also in that<br>
> meeting. We believe that the latter step was important in<br>
> introducing them to the people we hoped would be their future<br>
> Internet colleagues and would assist them in the developments in<br>
> their own countries.<br>
> <br>
> At the time I was working at New York University and was not<br>
> situated to assist in local preparation for the workshop. Joanne<br>
> lived in Palo Alto, and she believed that she could work with<br>
> Stanford University to provide lodging, classroom space, and meals<br>
> for the trainees and trainers during August 1993. She set about to<br>
> do it with a vigor, enthusiasm, and initiative that characterized<br>
> her contributions to the workshop for the next five years.. She<br>
> convinced the University to provide dormitory space, meal<br>
> arrangements,and suitable classroom space for the entire process,<br>
> and she coordinated all of the preparatory work, including the<br>
> procurement, delivery, and set up for a large number of personal<br>
> computers to be used by the three training tracks. She also arranged<br>
> for several social events in the evenings to foster a sense of<br>
> professional community among the attendees, as well as to meet local<br>
> people who lived in the Palo Alto area. I remember her setting up a<br>
> fireside chat with Vint Cerf one evening, which resulted in a<br>
> spirited discussion of the potential of the Internet and the<br>
> importance of what it could provide for development.<br>
> <br>
> At the end of INET' 93, Jo-Anne and I had dinner with the INET'94<br>
> conference chair, and after reviewing the success of our workshop,<br>
> we decided to do it again, a decision that was repeated for several<br>
> years after that. Although it may not have been clear to the<br>
> workshop participants, the amount of logistical preparation<br>
> required to set up the Prague workshop in 1994 was immense. Only a<br>
> few years had elapsed since the erosion of the iron curtain and the<br>
> dissolution of the Soviet Union, and Czechoslovakia was in a rapid<br>
> state of change. Joanne cooperated with the Czech Technical<br>
> University to find space for housing in the Hotel Krystal, a tram<br>
> ride away from the University buildings in which staff would be<br>
> teaching the four tracks. The Hotel Krystal even had a computer lab<br>
> with 24 computers, connected to the Internet via a low-bandwidth<br>
> permanent connection. During the workshop, Jo-Anne learned that our<br>
> Hotel Krystal had only been a hotel for a few years and before that<br>
> it had been the training institute for the Czech secret police. We<br>
> wondered how many microphones were still installed in various parts<br>
> of the building, including the sleeping rooms. Jo-Anne also<br>
> discovered the "Chicago Pizza House" (not a typo!) in an<br>
> underground warren near the hotel, where we went for relief several<br>
> times to escape the rich Czech food offerings.<br>
> <br>
> Jo-Anne continued to participate actively in and support the<br>
> workshop activities in 1995 in Honolulu, in 1996 in Montréal and in<br>
> 1997 in Kuala Lumpur. In 1994 she discovered the local travel agent<br>
> in Palo Alto, Maria Orvell, who worked with Joanne and together they<br>
> became accomplished in bringing people from all parts of the world<br>
> to wherever the next INET meeting was going to be held.<br>
> <br>
> The process of choosing and assisting participants to attend the<br>
> workshops was extensive. Applications were solicited through a<br>
> number of channels, including disseminating information by<br>
> participants in formal workshops. These all came to Jo-Anne and she<br>
> prepared them for evaluation by a committee consisting of the<br>
> teaching staff for the next workshop. After that, the complex<br>
> process of distributing the financial resources that we were able to<br>
> obtain, ascertaining the possibility of visas and helping<br>
> participants to obtain them (including making intercessions with the<br>
> host country), and making flight arrangements, and this generally<br>
> had to be performed individually for each participant. The logistics<br>
> process took a lot of time andinitiative, and Joanne was able to do<br>
> it, always in time to meet our deadlines.<br>
> <br>
> Jo-Anne was a true partner. She embodied the spirit of the Internet,<br>
> helping, sharing, supporting, and giving of herself so that others<br>
> might learn and in turn share with a new with others in their<br>
> country. She believed strongly in the Internet's ability to help<br>
> people in earlier stages of development, and she gave herself fully<br>
> to the task. Many workshop participants saw her correctly as<br>
> fundamental to the success of their experience. I'm glad that she<br>
> lived long enough to observe the benefits of her contribution to<br>
> global Internet development, but very sad that she was not able to<br>
> continue to do so. She will be missed.<br>
> <br>
> George<br>
> <br>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~<br>
> George Sadowsky Residence tel:<br>
> +1.301.968.4325<br>
> 8300 Burdette Road, Apt B-472 Mobile:<br>
> +1.202.415.1933<br>
> Bethesda MD 20817-2831 USA <br>
> Skype: sadowsky <br>
> <a href="mailto:george.sadowsky@gmail.com" target="_blank" rel="noreferrer">george.sadowsky@gmail.com</a> <mailto:<a href="mailto:george.sadowsky@gmail.com" target="_blank" rel="noreferrer">george.sadowsky@gmail.com</a>> <br>
> <a href="http://www.georgesadowsky.org/" rel="noreferrer noreferrer" target="_blank">http://www.georgesadowsky.org/</a> <br>
> <br>
> <br>
> <br>
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